Friday, November 20, 2009

Complete Results

They're not that bad, but they're abnormal enuogh to be good because it tells me why I feel like crap all the time! The best part is that it's fixable.

What I knew the other night is all there is, the more part was instructions he had for me. So I'm mildly anemic, but my vitamin D (it is D btw, not B) deficiency is really abnormal. Normal levels go up to 100 and my level is 16. Ouch.

I've been taking a multi-vitamin but my supplement does not have iron in it, and the vitamin d levels in the vitamin are way too low. So I'm off to the pharmacy to get the doses he wants me to have.

I'm so hopeful that fixing this will allow my hair to stop falling out all over the place (it's bad), will take away my never ending headache, make my body stop aching, make me feel rested when I wake in the morning, and give me energy to exercise without feeling instantly ill when I try! I'm hopeful that when the deficiencies are corrected, I'll feel as well as my kids have been feeling lately!!

I don't think it's too much of a stretch to think it; we have the same disease and all had vitamin deficiencies--vitamins corrected theirs, so hopefully it will correct mine. They both feel amazing now, and aside from their meds they take everyday, you wouldn't think they were anything but healthy!

Maybe my meds do work after all--and maybe I'll see that when my vitamin levels come up;-

Here's to hoping!

Thursday, November 19, 2009

Grace

I love my snugglycuddly pajama loving boywho, by the pure grace of God, is doing so well. "Now all glory to God, who is able, through his mighty power at work within us, to accomplish infinitely more than we might ask or think. Glory to him in the church and in Christ Jesus through all generations forever and ever!" Ephesians 3:20-22 (NLT)

Wednesday, November 18, 2009

Blah!!

I have been feeling downright retch-ed all day today and I can't tell if it's only my chronic stuff, or if I am getting contagious sick, or both. I felt so bad earlier today and some of it is so not "my normal"--so I called my doctor to find out what the blood results were since I hadn't gotten them back yet.

They called me back and left a message on my machine since I gave permission--and the message got cut off right after I heard that I am very anemic and deficient in vitamin D--totally explains my weird new symptoms--and she called back right after getting cut off to tell me to call tomorrow to go over the rest because there's more.

Then Dr. Chin called and said he has my test results and to call him back. He said their okay, but just so you know, when Dr. Chin says it's okay, it doesn't mean it's normal.

I figured that since I forgot to do the genetic testing for Crohn's and I have to go out to get new supplements, I'll go to the lab for that one while I'm out--may as well get it all out of the way. I'm perplexed at how all my abnormalities connect, but that connecting of the dots may not come for some time still.

I have cute pictures but feel so crappy that I just can't share them tonight considering they are still on my camera. Be back tomorrow, hopefully with more results.....

Tuesday, November 17, 2009

Pajamas and Wishes

My sweet little cuties got new pajamas yesterday at Target and were so excited about it that they both put on a new pair in the car as soon as we got to our car in the parking lot. You can't tell, but Chelsea's pair has Hannah Montana on it and you may be able to see that Gavin's pair has characters from Star Wars the Clone Wars all over it. They also got new slippers to fit their growing feet, and because we only buy pajamas twice a year, they acted like it was Christmas! It was cute that they were so excited about something so simple.

Incase you're wondering, the red thing in Gavin's mouth is a red gummy vitamin--but the red is a natural food dye (from beets) instead of an artificial one like red #40. It was a great find and Gavin happily takes them without getting a sick tummy. The vitamins give him more energy than ever!

I just spoke to the lady that is working with us at the Make-a-Wish foundation and we decided it's time for Gavin to make his wish. I chose to hold off until he was at least 4 and a half because I wanted him to be older and more mature when he made his wish. He has matured so much since our pediatrician filled out the initial application last spring that he can clearly answer the following questions that they'll ask when they come....

"If you could be anyone, who would it be?"

"If you could go anywhere, where would you go?"

and "If you could have anything, what would it be?"

I think there's another one but I don't remember what it is. Back when Gavin was first approved for a wish, he didn't really understand the questions and wasn't giving honest answers but now he can and does. So we decided he is ready!

Since Gavin isn't terminal, I didn't feel the need to rush because each wish recipient only gets one wish in their lifetime. I want him to understand what he's being asked and what he's wishing for but I also want his wish to be something really special to him and one that he would always remember. If he's too young, he likely won't remember it.

Last night he made his answers really clear and they were definitely honest and thoughtful. Here are the questions again, but this time I included his answers:

If you could be anyone, who would it be? "*Commander Cody"

(*a clone trooper from Star Wars, the Clone Wars)

If you could go anywhere, where would you go? "Disneyland so I can fight Darth Vader."

(*The Jedi Training Camp at Disneyland--but he wants the one we fly to in Florida)

If you could have anything, what would it be? "All the Star Wars toys."

Sounds pretty clear to me!!

I'm excited to see what Make-a-Wish has in store for him, even though we won't be able to go to Disneyworld til next December (the heat they have the rest of the year would make Gavin too sick).

Well, I'm off to homeschool....have a great day!

Monday, November 16, 2009

True Companion

"I am my beloved's and my beloved is mine..." Song of Solomon 6:3True Companion by Marc Cohn

Baby I've been searching like everybody else
Can't say nothing different about myself
Sometimes I'm an angel
And sometimes I'm cruel
And when it comes to love I'm just another fool

Yes, I'll climb a mountain
I'm gonna swim the sea
There ain't no act of God girl
Could keep you safe from me
My arms are reaching out
Out across this canyon
I'm asking you to be my true companion
True companion

So don't you dare and try to walk away
I've got my heart set on our wedding day
I've got this vision of a girl in white
Made my decision that it's you allright
And when I take your hand
I'll watch my heart set sail
I'll take my trembling fingers
And I'll lift up your veil
Then I'll take you home
And with wild abandon
Make love to you just like a true companion

You are my true companion I got a true companion
True companion

When the years have done irreparable harm
I can see us walking slowly arm in arm
Just like the couple on the corner do
'Cause girl I will always be in love with you

And when I look in your eyes
I'll still see that spark
Until the shadows fall
Until the room grows dark
Then when I leave this Earth
I'll be with the angels standin'

I'll be out there waiting for my true companion
Just for my true companion

True companion

True companion


I'll Love you forever and ever babe!